Our Sponsors

Chelsea’s Hope Lafora Children Research Fund


Chelsea’s Hope is an international advocacy group for patients with Lafora Disease and their families.  A 501(c)3 non-profit organization since 2007, Chelsea’s Hope has focused on promoting awareness and providing support for patients and their families, as well as funding research.  Chelsea’s Hope was the sole sponsor of the 1st International Lafora Workshop in June, 2014.

National Institute of Health


This Workshop is also being funded through a National Institute of Health Research Conference Grant


Ionis Pharmaceuticals

Ionis is the leading company in RNA-targeted drug discovery and development focused on developing drugs for patients who have the highest unmet medical needs, such as those patients with severe and rare diseases.  Using its proprietary antisense technology, Ionis has created a large pipeline of first-in-class or best-in-class drugs, with over a dozen drugs in mid- to late-stage development.